CFS: Stories/Disability (Narrative Inquiry Bioethics)

Call for Stories for a Narrative Symposium: Living with the Label “Disability” | Narrative Inquiry in Bioethics—A Journal of Qualitative Research | Edited by Jeffery Bishop, MD, PhD and Naomi Sunderland, PhD

http://www.press.jhu.edu/journals/narrative_inquiry_in_bioethics/symposia.html

Narrative Inquiry in Bioethics will publish an issue focused on stories from people living with impairment-highlighting their encounters with both medical practice and research. The word “disability” suggests a coherent group with a set of common characteristics. Yet, there exists a broad spectrum of impairments experienced by the group of people with “disabilities.” Attention to such differences is important and diverse accounts may aide a more open and honest dialogue between stakeholders, policy makers, healthcare workers, and academics. We would like your true, personal stories in a form that is interesting and easy to read.

In writing your story, you might want to think about:

  • How does the label “disability” interact with other aspects of your life in health care settings, for example your gender, culture, and geographical location?
  • How does the term “disability” reflect your actual embodied experiences of impairment?
  • When does the label “disability” not do justice to your particular experience of impairment?
  • Have you accepted the label “disability” in your life? If yes, what effects has this had for you and others e.g. family, friends, health care providers, and co-workers?
  • Describe the kind of experiences you might have that are possible because of your impairment.
  • How have labels of disability affected the degree to which you feel that your “authentic voice” has been heard by others e.g. family, friends, health care providers?
  • How has the impact of the label disability changed for you over time e.g. as you have aged or as societal expectations and standards have changed?
  • How has the label “disability” been a hindrance in your life? Has the label been beneficial?
  • What else might you want people to know?

You do not need to address all of these questions-write on the issues that you think are most important to share with others. You do not need to be a writer, just tell your story in your own words. We plan to publish 12 stories (800 – 2000 words) on this topic. Additional stories may be published as online-only supplemental material. We also publish two to four commentary articles that discuss the stories in the journal. If we receive more stories than we can publish in the journal then the 1000 Voices group will invite those authors to share their stories on the 1000 Voices website.

If you are interested in submitting a story, we ask you first to submit a 300-word proposal-a short description of the story you want to tell. Please include a statement about 1) what type of impairment you are living with and 2) what country you live in. Inquiries or proposals should be sent to the editorial office via email: narrativebioethics@gmail.com 

Preference given to story proposals received by October 31, 2012. For more information about the journal Narrative Inquiry in Bioethics, the guidelines for authors, and privacy policies, visit our webpage with Johns Hopkins University Press at:

http://www.press.jhu.edu/journals/narrative_inquiry_in_bioethics/guidelines.html

Every issue of Narrative Inquiry in Bioethics will be available electronically to over 1,000 institutional subscribers via ProjectMUSE.

CFP: Health, Illness, Culture (Taipei Forum)

Call for Proposals: Health and Illness in Culture, Center for the Study of Languages and Cultures (CSLC), Taipei Medical University (TMU), Taiwan, TMU Language and Culture Forum 2012: Health and Illness in Culture, Taipei Medical University, Taiwan

Friday, December 21, 2012

http://call-for-papers.sas.upenn.edu/node/46431

The “TMU Language and Culture Forum 2012: Health and Illness in Culture” invites a wide variety of topics related to representations of health and narratives in culture. Interdisciplinary proposals representing humanities and the arts (e.g., literature, history, film, visual arts) or social sciences (e.g., anthropology, cultural studies, sociology) or medical related fields (e.g., public health, nursing, medicine, pharmarcy) perspectives through historical or contemporary contexts are welcome. This one-day conference emphasizes the pursuit of understanding of health and illness and the exploration of the social and cultural contexts in which we all live in. Subject areas might include but are not limited to:

  • Stories of illness from patient and health practitioner perspectives in novels, short stories, memoirs, graphic novels, etc., discussed in larger sociocultural (ethnicity, race, gender, class), and political (health care system) contexts;
  • Historical and contemporary narratives of illness in films; TV comedy, drama, reality programming; advertising; marketing; news media; web and social media;
  • Historical and contemporary representations of stigmas of illness in popular culture genres; representation and misrepresentation in healthprofessional education and practice;
  • Disability narratives in literature, history, popular culture;
  • Representations of health institutions or health practitioners in historical and contemporary perspectives;
  • Health care reform discourse (e.g., public debate over national health insurance in electoral politics, disability rights “patient-centered” health care, medical homes, health care access, health disparities, electronic medical records);
  • Pharmaceuticals and pharmaceutical industry (e.g., drug/prescription/OTC use, misuse, popular perceptions, promotion and marketing; pharmaceuticals and meanings of illness and wellness; drug development or regulation; clinical trials);
  • Historical and contemporary perspectives on public health “threats”;
  • Historical and contemporary representations of promotion of health through such strategies as diet, exercise, personal or domestic hygiene, positive psychology;
  • Historical and contemporary narratives of epidemics, pandemics, emergingand re-emerging diseases;
  • Cultural representations of aging, forgetting, obesity, smoking, addictions, antibiotic resistance, radiation, cancer, life science, andgeneral medical issues.
  • Reflections on life, bio-life, biopolitics, post genomic life, posthuman and cloned lives.

Contributions from interdisciplinary and single disciplines are welcome. Individual or full panel proposals are considered. Please email your 250-word proposal and a CV to Chung-jen Chen at cameralove@tmu.edu.tw  by 15 July 2012.

Proposals for complete panels with three related presentations are also welcome. Please feel free to email with enquiries.

Co-organizers: Graduate Institute of Humanities in Medicine, TMU, and College of Liberal Arts, TMU

CFS: Sexuality & Disability

Sexuality and Disability

A Journal Devoted to the Psychological and Medical Aspects of Sexuality in Rehabilitation and Community Settings (Editor: S. Hough)

Sexuality and Disability provides original scholarly articles addressing the psychological and medical aspects of sexuality in relation to rehabilitation. Publishing up-to-date articles, case studies, clinical practice reports, and research and survey data reports, this international quarterly offers you the latest developments in the areas of sexuality as it relates to a wide range of disabilities. Contributions address consumer issues; clinical and research progress; community programs; independent living programs; guidelines for clinical practice; contemporary developments in special programs in sex education and counseling for people with disabilities. Special issues with internationally renowned guest editors concentrate on current topics in sexual health. Sexuality and Disability is an essential resource for the exchange of new knowledge, techniques, and available modalities for rehabilitation professionals, patients, and staff members of community and independent living programs.

Impact Factor: 0.311 (2008)

http://www.springer.com/psychology/community+%26+environmental+psychology/journal/11195

CFP: Disability Health Svcs, Low & Middle Income Countries

Call for Abstracts: International Research Symposium: Equitable Health Services for People with Disabilities with a Focus on Low and Middle Income Countries

The symposium will be held at the London School of Hygiene & Tropical Medicine: http://www.lshtm.ac.uk/aboutus/location/ The deadline for submission of abstracts is end of Friday July 29th 2011: http://disabilitycentre.lshtm.ac.uk/news-and-events/equityhealthdisability/

Co-organised by the London School of Hygiene & Tropical Medicine (LSHTM) and the World Health Organisation (WHO) Tuesday November 8th, 2011, The World Report on Disability, mandated by the World Health Assembly and jointly published by WHO and the World Bank, will be launched in June 2011. The Report includes the first updated prevalence estimates for disability since the 1970s, reviews the factors that affect disability trends, the barriers that prevent people with disabilities from participating fully in their societies and the impact that these barriers have on the lives of disabled people.

A specific focus of the report is on the health of people with disabilities in light of the UN Convention on the Rights of Persons with Disabilities (CRPD) which reinforces amongst other fundamental rights, the right of persons with disabilities to attain the highest standard of healthcare, without discrimination. Evidence suggests that people with disabilities have unequal access to general healthcare services and unmet healthcare needs compared with the general population, particularly in low and middle income settings. Unmet rehabilitation needs are also common and can restrict participation, cause deterioration in health, increase dependency on others, and decrease quality of life.

The forthcoming World Report on Disability highlights gaps in knowledge and stresses the need for further research and changes towards disability inclusive policy and practice. This one day international symposium, seeks to bring together researchers, policy makers, disability advocates, NGOs, health and rehabilitation professionals, and donors to share current research on equity in health care for people with disabilities and promote interdisciplinary action in policy relevant research.

We are encouraging abstracts for presentations and posters focusing primarily on research and evidence in low/middle income settings across these three broad themes:

1. At the level of the individual

What differentials in access to general health services exist between persons with disabilities and individuals without disabilities? And among the diversity of people with disabilities (e.g. men and women, impairment, children)? What are the unmet healthcare needs of persons with disabilities? What barriers are faced by people with disabilities (e.g. attitudinal, environmental, communication, financial) in accessing general health and rehabilitation services? How are these barriers specific to people with disabilities? To what extent do barriers to access impact the health and well-being of people with disabilities?

2. At the level of the system or service

How can health systems be structured and the quality of general health care and rehabilitation services improved to address barriers and achieve equity, effectiveness, appropriateness and safety? How to estimate the resources necessary in rehabilitation to fulfill the needs of people with disabilities? What innovations at the service or system level can be introduced to improve access? What is required to deliver equitable services in challenging environments? (e.g. in disaster, conflict situations) What works in community-based rehabilitation in improving access to general healthcare and rehabilitation services? How can the active participation of people with disabilities, in the promotion and planning of healthcare services, be ensured? How to ensure health and rehabilitation professionals deliver high quality services which respect the rights and dignity of persons with disabilities?

3. From research to policy

How to ensure research is translated into policies and practice? How can research be developed, undertaken and disseminated in ways which are relevant and accessible to people with disabilities and their representative organizations, policy makers, practitioners etc?

Papers on the above themes that incorporate the following cross-cutting issues are encouraged:

  • Participatory and emancipatory research methods
  • Methodological issues in the collection of disability-related statistics
  • Examples of where evidence/research has led to change in practice or policy

Contacts: Email: disabilitycentre@lshtm.ac.uk Postal Mail: London School of Hygiene and Tropical Medicine, Keppel Street, London, WC1E 7HT, England

CFP: Disability and Ethics through the Life Cycle

Disability and Ethics through the Life Cycle: Cases, Controversies, & Finding Common Ground, May 21-22, 2010, Union College, Schenectady, NY

Despite a common interest in facilitating good medical care, bioethicists and members of the disability rights community sometimes differ in their approach to issues arising in the bio-medical settings, especially on such polarizing issues as abortion and physician-assisted suicide. Focusing on these polarizing issues, however, distracts attention from other ethical issues that affect people with disabilities in biomedical contexts. This conference will offer a forum for bioethicists, disability-rights advocates, and other stakeholders with a different focus for discussing these issues by viewing disability from a life -cycle perspective. People confront disability through the life cycle: infancy, childhood, reproductive years, middle age, and old age. At each age they confront situations with ethical dimensions that present them, their families, and their caregivers and biomedical researchers with ethical challenges. This conference is designed to promote interdisciplinary conversations about these less frequently discussed ethical issues.

We are soliciting contributed papers or panels for highly interactive sessions. Those interested should submit a 250-word abstract describing original work that does not substantially overlap with papers already published. Topics of interest include but are not limited to specific cases where disability generates ethical issues during infancy, childhood, the reproductive years, middle age, and old age, or research on people with disabilities. Because of the conference’s life-cycle focus, no papers on prenatal issues or assisted suicide will be considered.

The authors of accepted submissions will be invited to present their work at the conference. Presentations on these papers should not exceed 20 minutes in length. Accepted papers will be considered for publication in a printed volume to be edited by conference organizers.

General & Format Guidelines for Abstract Submission

  1. Abstracts must not exceed 250 words.
  2. Abstracts should contain the names, degrees and institutions of all authors.
  3. Abstracts should contain the contact information of at least one author (the submitting author), including an email address.
  4. Abstracts should be submitted to blooma@union.edu with a subject line of “Disability and Bioethics”.
  5. Deadline for abstract submission is 15 March 2010.
  6. Email notification of accepted abstracts will be sent by 5 April 2010.
  7. The presenting author(s) of a contributed paper must register for the conference and pay the registration fee $150 in order to have the paper included in the conference.

Sponsors: Albany Law School, Rapaport Ethics Across the Curriculum Program of Union College, & the Union Graduate College-Mount Sinai School of Medicine Bioethics Program

For additional information, contact blooma@union.edu  or noltea@uniongraduatecollege.edu

Call for Proposals: Anthology on Disability and Passing

Blurring the Lines: Disability, Race, Gender and Passing in Modern America by Jeffrey A. Brune and Kim E. Nielsen, editors

Although one of the common experiences of passing involves disability, scholars have devoted little attention to this important topic. Studies of passing have also paid insufficient attention to the interplay that occurs between disability, race, gender, sexuality, and class when people transgress and create identity boundaries. Blurring the Lines: Disability, Race, Gender and Passing in Modern America is an effort to correct these intellectual omissions and advance the study of this important topic. The editors of this forthcoming anthology seek proposals for scholarly articles on disability and passing. We especially seek proposals that analyze aspects of identity such as race, class, gender, and sexuality, in addition to disability.

The editors welcome submissions from all fields in the humanities and social sciences for this interdisciplinary collection. We expect the anthology to reflect the work being done in fields ranging from literary theory to history to sociology. The anthology will focus mainly on modern America, but we also welcome articles that offer a comparative perspective from a different time or place. The editors are not looking for personal narratives, but will consider personal accounts set within a strong analytic framework. We hope to limit the number of articles with a biographical or autobiographical approach.

To be considered for the anthology, please send a proposal of 250-500 words to both editors, Kim Nielsen nielsenk@uwgb.edu , and Jeff Brune jeff.brune@gallaudet.edu . We also request a c.v. of no more than five pages. All documents should be in MS Word format (.doc or .docx). Proposals should include the author’s name, institutional affiliation (if applicable), email address, postal address, and article title.

Proposals are due October 1, 2009 and we will notify authors of acceptance or rejection by November 10. Contributors will then have until June 1, 2010 to complete their articles of up to 10,000 words. We plan the book to be published in 2011. Please feel free to email the editors with any questions. We look forward to receiving many submissions on this important and exciting topic.

CFS: Diversity in Health and Social Care

Diversity in Health and Social Care (a peer reviewed journal published by Radcliffe Medical Press) is now seeking papers for Volume 6: (2009) They invite papers on the following range of topics
• social care issues including gender, sexuality, disability and social inclusion from the perspective of clients, service providers or managers;
• debate papers that address key issues in diversity or that focus on under-researched topics;
• research papers that address any aspect of diversity, including evaluative studies and methodological debates;
• practice papers that provide examples of multi-professional practice or which address the practicalities, policy or managerial aspects of delivering services to members of diverse groups;
• knowledge-sharing reports, book reviews, initiatives to improve practice, and tools and resources for practitioners.
All papers will be peer reviewed. Please send all contributions via email to the editors
Professor Paula McGee, Faculty of Health, Birmingham City University , Perry Barr, Birmingham B42 2SU.
Tel: 0121 331 5340 Email paula.mcgee@uce.ac.uk
Professor Mark Johnson, Mary Seacole Research Centre, De Montfort University, 266 London Road, Leicester LE2 1RQ
Tel: 0116 201 3906 Email mrdj@dmu.ac.uk
Instructions for authors, past issues, and other details can be found on the website: http://www.ingentaconnect.com/content/rmp/dhsc

Follow

Get every new post delivered to your Inbox.

Join 98 other followers